Worcestershire Mum, Ruby Edwards, founded Funny Blood to raise awareness of her son’s rare blood condition. Ruby’s son – Noah – was only one when he was diagnosed with the rare condition called Platelet Function Disorder with Thrombocytopenia.
This means that the number of platelets in his blood are very low and do not work correctly, so even a minor bump may lead to excessive bruising. If Noah is unlucky enough to cut himself he can bleed for a very long time and he often requires urgent attention and treatment. The name – Funny Blood – is derived from the way Ruby described Noah’s blood to him and his sister.
As with many families living with blood disorders, Ruby has been accused of physically abusing her son and often endures the looks that indicate people believe Noah is not being well looked after. Ruby founded Funny Blood in 2009 to turn her experience into something positive – to share information with other parents and children with similar disorders so they would not have to go through the same experience alone.
Funny Blood raises funds for research into Platelet Function Disorder at Birmingham Children’s Hospital and the Platelet Group at The University of Birmingham – alongside the British Heart Foundation and Wellcome Trust. Funny Blood has hosted a number of local events including a BBQ at Clive’s Fruit Farm when they raised over £1500 for The Platelet Group. Other campaigns include Wear Blue for Funny Blood – which was launched on 22 June 2012 – as well as various other functions to be announced.
Please take a look at the website www.funnyblood.co.uk to see what Funny Blood’s aims are and how it has been successful so far. Indeed, Ruby and family joined David Cameron PM at Number 10 Downing Street to celebrate ‘Children of Courage’ in December 2011 and have appeared on BBC Breakfast TV with Charlie Stayt and Louise Minchin. Funny Blood has also appeared in the national press including features in The Daily Mail, Telegraph and Metro and regularly in local press and on BBC Radio Hereford and Worcester.
Funny Blood is a not for profit organisation aiming to be incorporated as a Charitable Trust. The team are working towards gaining local and national support to raise the £5,000 necessary to apply. If you can show your support to this good cause, Ruby and the Funny Blood team would be delighted to hear from you. Contact Ruby via the website www.funnyblood.co.uk, follow them on Twitter @FunnyBloodTweet and on Facebook https://www.facebook.com/pages/Funny-Blood.