Who will win? My vote goes to Little Mix, it’s about time we had a new girl band and I have a soft spot for Tulisa who has done a marvellous job mentoring them, I just wish she wouldn’t do that thing with her arm at the beginning of the show.
The X Factor Charity Single this year, a cover of ‘Wishing on a Star’ one of my favourite Rose Royce classics costs £3.99 and ALL net proceeds go to the charity Together for Short Lives and will provide care and support for families so they get the help they need.
I don’t know about you but I couldn’t help but be touched very deeply at the thought of over 23,500 children and young adults across the UK that are unlikely to reach adulthood. I have written before about our personal struggle to have children and of losing those fiercely desired pregnancies which is an incredibly heartbreaking moment in any parents life but the thought of bringing healthy children into the world and nurturing them only to find some disease will take them away from you – soon chills my blood.
As I sat and watched the story of Helen and Chris Lloyd unfold I was in tears, all three of their boys were born healthy but Duchenne Muscular Dystrophy had shown it’s ugly face in BOTH her twin boys Dan and Sam by the time they were five and wanting to make sure their third younger son Tom was safe they had tests carried out only to find he suffered from the genetic disorder as well.
Reality? Helen will lose all three of her boys before they became adults.
Let’s not leave dad out of the equation but being a mother I find myself slipping into Helen’s shoes to see what it must feel like and I find myself quickly jumping out of them and thanking the world that we are so ‘lucky’.
Together for Short Lives step in with these families, the Lloyds for example have all three boys in wheelchairs and a simple outing becomes an operation requiring military precision. They offer families 24 hour care even 7 days a week when needed and as you can imagine, relationships can suffer, careers may have to be abandoned, siblings can feel left out and normal family activities aren’t any longer an option.
Together for Short Lives
- Helps families know ab out care available to them
- Works with organisations so that they continue to offer the highest standards of care
- Raises and distributes funds to essential care organisations
- Provides a voice for children, families and providers, ensuring they are heard by governments
- Highlights the needs of children, young people and their families requiring support
Claire House has been a Godsend for the Lloyd family over the past 10 years, initially for physiotherapy and then as the boys became more accustomed to the surroundings and staff, they stopped over for sleepovers giving mum and dad some very special and needed time to have a break and recharge their batteries. Both parents are full time carers to their three sons – a 24 hour job which is physically and emotionally demanding.
The 16 year old idential twins are bright kids and nailed 19 GCSE’s between them this year, they just want to be like other kids but this can’t always be the case, with a condition like Duchenne MD the goal posts change all the time and the Lloyd family experience this three times over. Claire House enables them to ride the storms and enjoy the good times and when the time comes, the hospice will be there to deliver the best possible end of life care.
And it’s that last phrase that sends shivers up my spine.
Please buy or download a single today, now, Rose Royce is a classic and the X Factor contestants, JLS and One Direction have covered it beautifully. You will know that you are making these families lives a little bit brighter.